You are not alone in carring your child with Anencephaly to term.This is what Lucas' mom has to say to parents who have been given the adverse prenatal diagnosis of Anencephaly:

“I have been told by many that they couldn't do what I did. I am not a saint and you don't know what you can do until you are faced with it. You have to understand that while I carried Luke, God carried me. That is what made the difference. It was not my strength but God's and that strength is available to anyone who asks. The secret is in the asking. For those of you starting this journey, you will never be the same, you will be better. It is a hard journey but our babies are more than worth the effort. We don't look back in regret and continue to look up in faith."

Anencephaly: Lucas' Story   Anencephaly: Anouk's Story
Anencephaly: John Raphael's Story   Anencephaly: Anastasia's Story
Anencephaly: Hope's Story   Anencephaly: Logan's Story
Anencephaly: William's Story   Anencephaly: Cyril's Story
Anencephaly: Benedict's Story   Anencephaly: Charlotte's Story
A Note from the parents of Benedict and Charlotte (brother and sister):
Benedict Oliver and Charlotte Mary both had anencephaly. They were born 3 years apart. Benedict lived for 24 hours and 13 minutes, 25/6/01 - 26/6/01, and Charlotte lived for 6 days, 21/6/04 - 26/6/04!  How surprised we were that Charlotte went to heaven on Benedict's anniversary! Our time with them was so very precious. They touched many people's lives, and I hope that through this story, they will touch yours, too.
Anencephaly: Austin's Story   Anencephaly: Emma and Connor's Story
Anencephaly: Mary's Story   Anencephaly: Alphonso's Story
Anencephaly: Emma's Story   Anencephaly: Karinne's Story
Anencephaly: Loren's Story   Anencephaly: Jessie's Story
Anencephaly: Amalya's Story   Anencephaly: Grandma's Story

If you have an Anencephaly story to share, please submit it to us by contacting

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.


Anencephaly Links:

Anencephaly Info

Anencephaly Support Foundation

A PRO-LIFE, full-term anencephaly support forum

The amazing story of Faith Aminah

Moral Principles Concerning Infants With Anencephaly

Brazilian Anencephalic Baby Shatters Pro-Abortion Myths

Girl Who Defies Anencephaly Myths Dies In Brazil

"Calling All Angels" Video for Zion-Grace

Connor's Slideshow

Flores de Marcela Video--part I (click on right arrow for English subtitles)

Flores de Marcela Video--part II (click on right arrow for English subtitles)

Baby Without A Brain: A Miracle Story

Thoughts On Carrying To Term

John Paul-Ours For A Time

Nicolas Coke Lived Three Years Without a Brain

John's Story