Rare Metabolic Disorder Stories


You are not alone in carrying your child with a rare metabolic disorder to term. This is what Tali’s mom has to say to parents who have been given an adverse prenatal diagnosis involving metabolic disorders:

“Of course we would never wish these problems on anyone, but God, in His infinite wisdom, has given us such a treasure in this little angel. We are certain that our lives are far richer for having her in them.”

If you have a Metabolic Disorder story to share, please submit it to us by contacting mary@prenatalpartnersforlife.org.

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The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.


Phone: 763-772-3868

Fax: 866-870-9175

Prenatal Partners for Life
PO Box 2225
Maple Grove, MN 55311

Email: mary@prenatalpartnersforlife.org