Rare Chromosomal Disorders Stories


You are not alone in carrying your child with a rare chromosomal disorder to term. This is what Hannah’s mom has to say to parents who have been given an adverse prenatal diagnosis of a rare chromosomal disorder:

“We could have listened to those doctors that told us to leave her alone and let her die but we chose not to. Instead, we surrounded ourselves with professionals with the same goals for her that we have, people who are willing to fight for her and I would never give that up. Further, we have learned a lot about life through her eyes. We have learned to be thankful for the little things in life and we find a lot more joy in all of our children’s developmental milestones because we know that each one is a blessing and not something to be taken for granted. We are truly blessed to have Hannah in our lives!”

If you have a Rare Chromosomal Disorders story to share, please submit it to us by contacting mary@prenatalpartnersforlife.org.

Quick Info

Rare Chromosomal Disorders Links:

Rare Chromosomal Disorder Support Group


The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.


Phone: 763-772-3868

Fax: 866-870-9175

Prenatal Partners for Life
PO Box 2225
Maple Grove, MN 55311

Email: mary@prenatalpartnersforlife.org