Congenital Heart Defects Stories


You are not alone in carring your child with a congenital heart defect to term. This is what Seamus’s mom said in regards to their adverse prenatal diagnosis of Hypo Plastic Left Heart Syndrome:

“I think one of the scariest times for us was just after Seamus was diagnosed. My husband looked Hypo Plastic Left Heart Syndrome up on the internet. The first article that he read suggested therapeutic abortion or letting the baby die after birth because this heart defect is so severe. Looking back now, I am glad we never even gave that a thought. The medical community is making such huge advances in this area that much of what is found is outdated misinformation.”

If you have a Congenital Heart Defect story to share, please submit it to us by contacting


The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.


Phone: 763-772-3868

Fax: 866-870-9175

Prenatal Partners for Life
PO Box 2225
Maple Grove, MN 55311