is a beautiful boy born with full Trisomy 18. His family
found out two days after his birth that he had this
Markers were identified at a
level two ultrasound, and an amniocentesis was offered.
Peter's parents declined, not wanting to risk hurting
their baby and knowing they would never intentionally
end the pregnancy.
Trisomy 18 was described to
them as a fatal condition with rare survivors who only
live a few weeks.
An online information study conducted
by their older daughter led them to many surviving
children, some in their thirties. Peter's parents
wanted him treated like any other child.
Some difficulties arose because
of this. Peter has had a P.D.A. ligation, a hernia
repair, and a liver biopsy.
Peter's family cherishes each
day they have with him. They are strongly supported
with many prayers from family, friends, neighbors, parishioners,
and some very special priests and religious. Many
Doctors and nurses have also given the family much support.
Peter has brought his family
closer together and has inspired them in many ways.
He has taught his siblings many lessons about life and
perseverance. He has motivated them to be the
best people they can be. He is everyone's little
hero as he meets and surpasses expectations.
Peter's family thinks that next
to their faith, he is the best gift God has given them.
They look forward to celebrating Peter's first birthday
at the beginning of 2006!
Story (written for the US Conference of Catholic Bishops)--PDF
A Prayer Answered (written by Mary Kellet)
to Trisomy 18 Stories
-The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.