Anencephaly Stories


You are not alone in carrying your child with Anencephaly to term. This is what Lucas’ mom has to say to parents who have been given the adverse prenatal diagnosis of Anencephaly:

“I have been told by many that they couldn’t do what I did. I am not a saint and you don’t know what you can do until you are faced with it. You have to understand that while I carried Luke, God carried me. That is what made the difference. It was not my strength but God’s and that strength is available to anyone who asks. The secret is in the asking. For those of you starting this journey, you will never be the same, you will be better. It is a hard journey but our babies are more than worth the effort. We don’t look back in regret and continue to look up in faith.”

If you have an Anencephaly story to share, please submit it to us by contacting


The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.


Phone: 763-772-3868

Fax: 866-870-9175

Prenatal Partners for Life
PO Box 2225
Maple Grove, MN 55311