This page lets us express how our hearts are touched by these special children, and their families' experiences.
|Saints Among Us
||By Rick Santorum
|Forever Her Perfect Boy
||By Lane DeGregory, Times Staff Writer
|Carly, When I Think of You
||By Carly's mom
||By Peter Baklinski
||By Rick Santorum, former senator
|Peter's Story (2013)
||By Mary Kellet
||An awful loss, a beautiful life, a daunting task
|A Prayer Answered
||By Mary Kellet
|The Value of "Imperfect" Children
||And why aborting them is wrong.
|The Blessed Life of Simon
||Detailed in a book...
|A Doctor's Ministry
||Bridging science and spirit
|Lane Hauber's Story
||Written by his father, Alex
|The Devastating Choice
||By Molly Myers
||Written for his sister Gianna
|God's Grace From Heaven
||Kate's poem for Gianna's Burial
|Even The Smallest Person
||Aaron's early birth story
|I Am The Face Of Trisomy 18
||A poem by Alisha Hauber
|In Honor Of Caleb
||Posted by Patricia Tillis Caldwell
|God Lives Under The Bed
||Downloadable story (.docx)
||An article by MR Mercurio
||A poem by Katherine Eby
|Austin Beats The Odds
||A family's medical journal
|The New Eugenics
||Article by Dr. Marie Hilliard
|Beatitudes for Disabled People
||By Marjorie Chappell.
Special Day In Heaven
||A Poem (author unknown)
To Twin Transfusion Article
||Article featured in Kentuckian
Sisters Disciples of the Lamb
||A religious community in
France specifically established for Sisters with
||An article in the Elburn
Makes a Mother
||A Poem by Jennifer Wasik
the Miracle Baby
||The story of little Georgia
||Article by Barbara Farlow,
Mom to Annie
||Inclusive Solutions Article
Government Run Health Care Would Ration Care for
||CBN News Article
Reform Overlooking Children with Disabilities?
||CBN News Article
a Child Destined Soon To Die
||From "The Catholic
||A mother writes of her
||A poem by Mother Angelica
||A blog filled with stories
Friend Shares Her Thoughts...
||...about Amanda who has
Dismissed My Daughter
||By a mother facing Down
Sent to Me an Angel
||A poem by Paul Dammon
||by Erma Bombeck
||A Pastor's perspective
||A mother ponders her son's
short but beautiful life
Leap Of Love
||Adoptions of Children With
Down Syndrome Are on the Increase, according to
by my Lost Son
||A mother discusses her
||Pro football coach shares
his son's story
||"My brother is not
||News & Commentary on
Value Of These Precious Lives
||An article written for
the Pioneer Press
The Fears of an Adverse Prenatal Diagnosis
||An article written by Celebrate
||A mother's eulogy for her
Benedict XVI's Cousin
||The Pope's opposition to
euthanasia is personal, having a cousin with Downs
who was taken by the Nazis.
will be loved...
||By Andrew and Louise Novecosky
||By Kathy Ratkiewicz
||A Touching Trisomy 21 story
featured on CNN.com
||Words of wisdom by Father
Mother's Day Letter To Luke
||A mother's touching letter
to her son, concluding with a prayer for comfort
||More than 20 pages of one
mother's insights and honest reflections through
her brave journey (last updated 12/13/07)
||Written for US Conference
of Catholic Bishops
To A Friend
||Ricky's mother shares her
||A poem with love from Peter's
In The Valley Of Tears
||Finding redemptive purpose
in our suffering
||How a special needs child
impacts those around him.
||A touching and inspirational
||A mother writes from the
perspective of her little one, diagnosed with Trisomy
Carry A Dying Child?
A Mother's Perspective.
|From a mother who has lost
two children and a nephew to anencephaly.
to an Abortion Clinic
||A letter to an abortion
clinic by one of its clients.
||One woman's story about
her Trisomy 13 - affected daughter, Annie
||A father's eulogy for his
Torch of Love
||One woman's story of how
she was touched by a special child
|John Paul Robert
|A Symphonic Dream
||Video by Karl Kohlhase
|A Child With Downs Syndrome
||Changes the Family Forever
||Connor and Cayden (with cerebral palsy)
|10Year Old Blind Autistic Boy Sings
||"Open the Eyes of My Heart"
|Krista Horning's Testimony
||How do I live with disability?
|John Paul-Ours For A Time
||A mother talks about her son with anencephaly
||Remembering Peter Kellet
|Our Story of Kannon
||Kannon's story on YouTube
|If You Have A Pulse You Have A Purpose
||Jonathan's story on YouTube
|Parents Fight For Sons's Medical Rights
||The struggle of Lane Hauber's parents
|Celebrate Everything--A Tribute To Caleb
||YouTube video celebrating the life of Caleb who had T-18
||YouTube vide by Senator Santorum
||Video about Stefan and Tyler Delp
|Changing The Label-- Video
||YouTube video advocating support for T-13 and T-18 families
|One Extra Chromosome
||Intoducing many children who proved the doctors wrong
|An Extra Special Missionary
||Narrated by the mom of a child with special needs
||Video on Wisconsin Right To Life
||A mother discusses her experiences with Trisomy 13
|When A Baby Dies
||A grieving mother ponders the question: "How are you doing?"
|A Bittersweet Journey (video)
||Video in honor of Matthew Benjamin Spadoni
||A young man overcomes his
"disabilities" as he explores his extraordinary
musical gifts--The Music of Opportunity
||Video set to the song "Ordinary
||Audition on American Idol
||A video tribute by the
parents of Zakk Anthony Devlin
||A father, a son, a triathalon,
and the power of Christ within
Tribute to Lucas
||Baby Lucas had Trisomy
Memory of Braylen Merck
||Braylen had been diagnosed
with multicystic kidney disease...
||Touching Trisomy 13 video
de Marcela Video--part I
||(click on right arrow for
de Marcela Video--part II
||(click on right arrow for
||Parents concerned about
national health care program
Have a Voice
||Video for Downs Syndrome
||Slideshow for baby Connor
||Video in memory of precious
||Video tracking Ava's experience
Fight To Survive...
Hernia." Birth story video.
||Created by Terri Helmick
in honor and celebration of all the babies born
with Congenital Diaphragmatic Hernia
Doesn't Make Mistakes
||Beautiful Down's Syndrome
song and video
the Heart Of a Parent
||A collection of short videos
of families who have been comforted by Now I Lay
Me Down To Sleep (photography)
I Lay Me Down To Sleep (video)
||Video created for families
||Slideshow created for Luke
||Video created by the parents
of Zion-Grace Elizabeth Larson (anencephaly)
18 and Living (Kayden, age 7)
||Photo montage of Kayden,
who is now 7 years old, living with Trisomy 18 and
full of smiles
||Video in honor of Mieko
who had Trisomy 18
||News flash covering a Texas
man who is attempting to complete 20 Iron Man marathons
in one year to raise awareness for Trisomy
||A multimedia website created
by the loving parents of Zion-Grace Elizabeth who
passed away on 4-15-08
Young Mom Chooses Life
of a young mother who courageously chose life for
her little girl
||A little girl with Trisomy
||Incredible video about
the relationship between a father and son.... and
God's relationship with us.
||Site that discusses ethics
and patient centered care
& Wonderfully Made
||Prolife music video on
||A young man born with no
limbs proclaims Christ in extraordinary ways
Me A Chance
||Prolife song and video
by Karl Kohlhase
Syndrome Association Video
||A video presentation from
the Down Syndrome Association
||A support site for families
on the Trisomy 21 Journey, featuring a powerful
A touching video presentation
set to music.
Baby Annie died in a world class Children's Hospital
within 24 hours arrival at the age of 80 days.
The events that transpired in those hours involved
violations in health care Laws, hospital policies,
professional codes of ethics and indeed there
is a strong suspicion of criminal actions. The
final medication report is missing and the narcotic
cabinet reveals that over 30 times the amount
of morphine ordered was removed from the cabinet,
with none shown as wasted or returned.
The Coroner's Pediatric Death Review Committee
determined that the care provided was not appropriate
and that it was by no means certain that Annie
needed stressful surgery or prolonged intubation.
She was never on life support. A specific cause
of death could not be determined so the Coroner
determined that the death was due to "complications
of trisomy 13".
Although the Chief of the Critical Care admitted
that the actions of his staff were "unacceptable"
and the hospital provided a written apology for
ineffective communication, effective and sincere
plans for improvement could not be developed in
collaboration with the hospital.
The United Nation's High Commissioner's Office
became aware of the case and described many ratified
conventions under which complaints could be made.
Annie's family has made a complaint with Human
Rights and appealed for a Coroner's Inquest with
the support of many major disability groups.
All children, regardless of genetic disposition,
deserve a chance if the family determines that
it is in their best interest. Otherwise, they
deserve a peaceful and dignified death. Annie
was denied both.
||Story featured in "The
Daily News" in Michigan
||Austin's parents created
a personalized video for the song, "Down The
Road Of Bittersweet"
||A downloadable PowerPoint
presentation (about 5MB). You are invited to download
the presentation, change the names and use it for
your own Prayer Shower. Save this file to
your desktop before opening it.
||A touching video tribute
to Elliot's 99 days of life.
Love. Choose Life."
||A video presentation defending
life, set to "Amazing Grace".
||A video presentation set
to the classic song "What a Wonderful World"
Memory Of Fleur
||A video presentation from
the mother of little Fleur (Flower in French), who
was the inspiration behind the "The Little
Girl Version" of the song "Down The Road
Mabeus, A Gift from God
Story of Samuel, a child diagnosed in-utero with
trisomy 13 moasic who was carried to term against
medical advice to be a beacon of light and hope
montage a mother made in honor of her daughter with
||WCCO story about reporter Maya Nishikawa's daughter,
Mieko, who has Trisomy 18.
The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.