When most people think of thirty-six hours, they think
of a day and a half, but to Cadie , it was a lifetime. Cadie
was born with a chromosomal disorder called Trisomy
Thirteen. She never opened her eyes, she had the faintest
cry, and she was the most loved baby born onFebruary
I found out I was expecting
on the morning ofJuly 13th, 2006. I’ll never forget
the phone call I made to my mother. It started with
the usual, “Hello and how are things?” But
it soon progressed to, “I’ve got some news!”
and, “Someone in the family is having a baby!”
You see, I never have been all that great at keeping
a secret! This time though, I told her we were about
to be one more, but wouldn’t let slip just who
was expecting. She pestered me to death, asking if it
was this person or that. Finally, she struck gold! She
said, “Oh my goodness, it’s you!”
She spent five minutes quizzing me about the pregnancy
so far. Amazingly, she had to get off the phone right
away! She called my Aunt Rachel and filled
her in. I think she told every person in the state!
She was just so excited to be a grandma for the first
The whole family was ecstatic.
We hadn’t had a baby in the family since Chase,
and he was six years old! We all started talking about
names, and it didn’t take me long to decide. If
it was a boy, Chase got the honor of having his second
cousin named after him, Alexander.
You see, Alexander is Chase’s
middle name. But, if it was a girl, we had chosen Cadience
Faith. Nicole would say, “Cadie for short!”
The kids were always talking about who would get to
“sleep over” with the new baby, and it seemed
as if our family was finally going to be whole. We were
all anticipating the first ultrasound, and finally,
that day arrived. The sun was shining high in the sky,
not a cloud could be seen. No one would expect that
such a perfect day could end in such devastation.
The ultrasound showed a Nuchal
Thickening, which is thickening at the back of the neck.
That indicates a Trisomy Disorder such as Down syndrome
or Trisomy Thirteen. We prayed in the days that followed
for our baby to have Down syndrome and to be a little
girl. The doctor told us that little girls with these
types of disorders were stronger than little boys. We
wanted our baby to be strong.
My mom went with me on that
fateful day in September for the amniocentesis. When
we arrived back at my house that afternoon, I began
expecting the worst. My entire family was there, and
their tear-filled eyes and red, puffy faces told me
that I wasn’t alone in my fears. I didn’t
have to ask any questions. I ran straight to my Grandma’s
arms. My world was ending. No one said a word as we
sat in the living room crying. The world went on around
us, and we sat there, crying. The phone rang, and we
sat there, crying.
The next five months went by
without much ado. Christmas came and went, and it was
a somber affair. Jamie summed up everyone’s feelings
one day in January. She said, “I know that Cadie
is okay, as long as she is still in your tummy!”
–Paige, Nicole, and Chase are my first cousins.
We were all holding our breath
for the day that Little Miss Cadie was to be born.
The doctor said that women usually miscarry before their
twentieth week when they are carrying babies with chromosomal
disorders. Cadie surpassed that. Then, the doctors
said that I would lose Cadie before her thirtieth
week. Cadie surpassed that. The doctors said that
she was going to be stillborn. Cadie surpassed
that. Cadie was our miracle baby; her birth
and life proved that to everyone who was fortunate enough
to meet and love her.
My water broke atseven amonFebruary
20, 2007. Cadie was born at five-fifteen pm. -She
was a dark haired, four-pound, twelve-ounce, baby girl.
She was eighteen inches long and had six toes on each
foot. I remember the first time I saw her: she was so
tiny. I felt a love deeper than any love I knew could
Cadie never opened her eyes, never had a wet diaper,
and never left the hospital, but she touched many lives. Nicole
and Chase were nine and six years old. They were totally
and completely excited to have a “special”
baby cousin. They would go to the cafeteria to eat and
on the way down, someone would notice their “I
got my baby atSt John’s!” pins. One of the
two of them would always say, “Yeah! We have a
new cousin! Her name is Cadie!” Then, the other
one would pipe in with, “And she has six toes!”
Cadie died at three amonFebruary
22nd 2007. She was in the arms of her worldly mama one
minute and her Heavenly Daddy the next. People
who knew what was wrong with Cadie felt pity for our
family. We had a terminally ill baby. What those people
didn’t realize was that Cadie wasn’t someone
to be pitied. Her life was a miracle, a blessing in
Cadie’s funeral was one
of the hardest days of my life.Friday, February 23rd,
2007dawned dark and gloomy. It rained off and on all
day. God sensed our mood and gave us fitting weather.
We decided on a graveside service atfive pm. The casket
was so tiny. Cadie was laid to rest in an outfit
that I bought her. It was a little purple outfit with
bunnies on it. I stood beside my family and held Paige
close throughout the ceremony. I cried. I cried for
our loss, for what could have been, and for the pain,
but I never cried for Cadie. She was a happy, healthy
baby now. She was in the arms of Jesus, where she belonged.
to Trisomy 13
You can read more about
Trisomy 13 and receive incredible on-line support through
the private message board on www.livingwithtrisomy13.org.
-The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.