You are not alone in carring your child with Trisomy 13 to term. This is what Natalia’s mom has to say to parents who have been given the adverse prenatal diagnosis of Trisomy 13:

“Natalia is the JOY in our day, with smiles and giggles. She is mentally delayed...and that is ok...she is a person, with a heart, she feels, she smiles, she reaches for us, she follows us from room to room..."

 
Trisomy 13: Gracie's Story  

Trisomy 13: Natalia's Story

     
 

Trisomy 13: Gemma's Story

 

Trisomy 13: Anthony's Story

     

Trisomy 13: Gabriel's Story

 

Trisomy 13: Mitchell's Story

     
 

Trisomy 13: Maggie's Story

 

Trisomy 13: Amaya's Story

     
 

Trisomy 13: Lincoln's Story

 

Trisomy 13: Katie's Story

     
 

Trisomy 13: Melina's Story

 

Trisomy 13:Theo's Story

     
 

Trisomy 13: Katherine's Story

 

Trisomy 13: Sarah's Story

 

Trisomy 13: Isaiah's Story

 

Trisomy 13: Cadie's Story

   

Trisomy 13: Caleb's Story

   

If you have a Trisomy 13 story to share, please submit it to us by contacting mary@prenatalpartnersforlife.org.

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.

 

Trisomy 13 Links:

Living With Trisomy

The Healing Power Of Prayer

Trisomy

Trisomy 13 information and support and the story of Anthony Arritola

Hope for Trisomy 13 and 18

SOFT- Support Organization for Trisomy

Now I Lay Me Down To Sleep (video)

Choosing Thomas

Faces of Trisomy (video)

Loving Zeke (video)

Pediatrics Ethics Article

One Extra Chromosome

Kids with Trisomy Map

Trisomy Awareness Video--2011

The Role of a Pediatric Ethics Committee in the Newborn Intensive Care Unit

Changing The Label-- Video

Humble Student With Rare Disease Defies Odds

Lethality Begets Lethality

Trisomy 13 Awareness Video

Trisomy Awareness Video: What to expect when expecting a child with trisomy

We Are The World Of Trisomy 13 & 18 (video)

TAG, Trisomy Awareness Group

Study: "The Experience of Families with Children with Trisomy 13 and 18 in Social Networks

Caring For Children with Trisomy 13 and 18