You are not alone in carring
your child with HPE to term. This is what Meghan’s
mom has to say to parents who have been given the adverse
prenatal diagnosis of HPE:
“Meghan is the joy of
my life, I don't know what I would do without her. There
is a song by Martina McBride called "God's Will".
It is so fitting of her. Some of the lyrics say; "that
each day I have him, it's just another gift". That
is how I feel about having Meghan in my life, each day
with her IS "a gift".
If you have an HPE story to
share, please submit it to us by contacting firstname.lastname@example.org.
The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.