You are not alone in carring your child with a congenital heart defect to term. This is what Seamus’s mom said in regards to their adverse prenatal diagnosis of Hypo Plastic Left Heart Syndrome:

“I think one of the scariest times for us was just after Seamus was diagnosed. My husband looked Hypo Plastic Left Heart Syndrome up on the internet. The first article that he read suggested therapeutic abortion or letting the baby die after birth because this heart defect is so severe. Looking back now, I am glad we never even gave that a thought. The medical community is making such huge advances in this area that much of what is found is outdated misinformation.”

Congenital Heart Defect:
 
Congenital Heart Defect:
Seamus' Story
   
 
Congenital Heart Defect:
Luke's Story
  Congenital Heart Defect:
Khloe's Story
 
Congenital Heart Defect:
Jacob's Story
  Congenital Heart Defect:
Austin's Story
HPE
 
HPE
Congenital Heart Defect: Corrine's Story
 
Congenital Heart Defect: Josie's Story
     

If you have a Congenital Heart Defect story to share, please submit it to us by contacting mary@prenatalpartnersforlife.org.

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.

 

Congenital Heart Defect Links:

Children’s Hospital Boston on HPLHS

Hearts of Hope

Little Hearts

Congenital Heart Defect Resources

Luke's Slideshow.ZIP